国外社交媒体用户健康信息搜寻研究:进展与启示
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摘要
[目的/意义]现有的关于用户健康信息搜寻行为的研究很少探讨社交媒体的飞速发展给健康信息用户搜寻行为带来的巨大改变。回顾和分析国外社交媒体用户健康信息搜寻研究的相关文献,旨在总结其研究方法及研究主题,为相关专业人员和机构提供参考。[方法/过程]采用文献调研方法,对近几年国外学者关于社交媒体用户健康信息搜寻的研究进行综述和分析。[结果/结论]揭示已有研究中社交媒体用户健康话题讨论的特征,厘清社交媒体在用户健康信息搜寻过程中扮演的角色,探讨社交媒体用户在社交媒体平台上进行健康信息搜寻的优势和潜在风险,并提出对策性建议。
[Purpose/significance] Previous research on consumer health information seeking behavior rarely discussed how the development of social media changes consumers' behavior. This study reviews previous foreign literature regarding consumer health information seeking on social media. The objective of this study is to provide professionals and institutions concerned with a systematic review of the research methods and topics that appeared in the foreign research on consumer health information seeking behavior on social media. [Method/process] Through literature research, this article reviews and examines the existing literature published by foreign scholars over the last few years and focusing on consumers' health information seeking on social media. [Result/conclusion] The characteristics of health-related topics that social media users discussed are revealed, and the roles of social media in the process of consumer health information seeking are explored. In addition, we also discuss the potential advantages and risks of adopting health information from social media, and provide corresponding suggestions.
[Purpose/significance] Previous research on consumer health information seeking behavior rarely discussed how the development of social media changes consumers' behavior. This study reviews previous foreign literature regarding consumer health information seeking on social media. The objective of this study is to provide professionals and institutions concerned with a systematic review of the research methods and topics that appeared in the foreign research on consumer health information seeking behavior on social media. [Method/process] Through literature research, this article reviews and examines the existing literature published by foreign scholars over the last few years and focusing on consumers' health information seeking on social media. [Result/conclusion] The characteristics of health-related topics that social media users discussed are revealed, and the roles of social media in the process of consumer health information seeking are explored. In addition, we also discuss the potential advantages and risks of adopting health information from social media, and provide corresponding suggestions.
引文
[1]National Library of Medicine. Health information[EB/OL].[2018-10-24]. http://www.nlm.nih.gov/hinfo.html.
[2]SUESS S. Consumer health information[J]. Journal of hospital librarianship,2001, 1(4):41-52.
[3]NIEDERDEPPE J, HORNIK R C, KELLY B J, et al. Examining the dimensions of cancer-related information seeking and scanning behavior[J]. Health communication,2007, 22(2):153-167.
[4]TU H T. Surprising decline in consumers seeking health information[EB/OL].[2018-10-24].http://www.hschange.com/CONTENT/1260/.
[5]MORELAND J, FRENCH T L,CUMMING G P. The prevalence of online health information seeking among patients in Scotland:a cross-sectional exploratory study[J]. JMIR research protocols, 2015, 4(3):e85.
[6]Pew Research Center. Health fact sheet[EB/OL].[2018-10-24]. http://www.pewinternet.org/fact-sheets/health-fact-sheet/.
[7]LEWIS D, EYSENBACH G, KUKAFKA R, et al. Consumer health informatics:informing consumers and improving health care[M]. New York, NY:Springer Science&Business Media, 2005.
[8]Pew Research Center. The Internet and health[EB/OL].[2018-10-24].http://www.pewinternet.org/2013/02/12/the-internetand-health/.
[9]KESELMAN A, BROWNE A C, KAUFMAN D R. Consumer health information seeking as hypothesis testing[J].Journal of the American Medical Informatics Association:JAMIA, 2008, 15(4):484-495.
[10]DEERING M J, HARRIS J. Consumer health information demand and delivery:implications for libraries[J].Bulletin of the Medical Library Association, 1996, 84(2):209-216.
[11]GRIFFIN R J, DUNWOODY S, NEUWIRTH K. Proposed model of the relationship of risk information seeking and processing to the development of preventive behaviors[J]. Environmental research,1999, 80(2):230-245.
[12]SONG H, OMORI K, KIM J,et al. Trusting social media as a source of health information:online surveys comparing the United States, Korea, and Hong Kong[J]. Journal of medical internet research, 2016, 18(3):e25.
[13]COLE J, WATKINS C,KLEINE D. Health advice from internet discussion forums:how bad is dangerous?[J].Journal of medical internet research,2016, 18(1):e4.
[14]HETHER H J, MURPHY S T, VALENTE T W. It’s better to give than to receive:the role of social support, trust,and participation on health-related social networking sites[J]. Journal of health communication, 2014, 19(12):1424-1439.
[15]KUTTSCHREUTER M, RUTSAERT P, HILVERDA F, et al. Seeking information about foodrelated risks:the contribution of social media[J]. Food Quality and Preference, 2014, 37:10-18.
[16]RUTSAERT P, PIENIAK Z, REGAN A, et al. Consumer interest in receiving information through social media about the risks of pesticide residues[J]. Food control,2013, 34(2):386-392.
[17]VAN DE BELT T H, ENGELEN L J, BERBEN S A,et al. Internet and social media for health-related information and communication in health care:preferences of the Dutch general population[J]. Journal of medical internet research,2013, 15(10):e220.
[18]WORRALL A, OH S. The place of health information and socio-emotional support in social questioning and answering[J]. Information Research,2013, 18(3):1-15.
[19]THACKERAY R, CROOKSTON B T,WEST J H. Correlates of health-related social media use among adults[J].Journal of medical internet research, 2013, 15(1):e21.
[20]KISHIMOTO K, FUKUSHIMA N. Use of anonymous web communities and websites by medical consumers in Japan to research drug information[J]. YakugakuZasshi,2011, 131(5):685-695.
[21]PRYBUTOK G, RYAN S. Social media:the key to health information access for 18-to 30-year-old college students[J]. CIN:computers, informatics, nursing,2015, 33(4):132-141.
[22]RASMUSSEN-PENNINGTON D M, RICHARDSON G, GARINGER C,et al.“I could be on Facebook by now”:insights from Canadian youth on online mental health information resources[EB/OL].[2018-10-24].https://mindyourmind.ca/expression/blog/i-could-be-facebook-now%C2%9Dinsights-canadian-youth-online-mental-health-information.
[23]BENETOLI A, CHEN T F, SPAGNARDI S, et al. Provision of a medicines information service to consumers on Facebook:an Australian case study[J]. Journal of medical mnternet research,2015, 17(1):e265.
[24]NATH C, HUH J, ADUPA A K,et al. Website sharing in online health communities:a descriptive analysis[J].Journal of medical internet research,2016, 18(1):e11.
[25]WESTBROOK L, ZHANG Y. Questioning strangers about critical medical decisions:“what happens if you have sex between the HPV shots?”[J]. Information research,2015, 20(2):667.
[26]ZHANG M, YANG C C. Using content and network analysis to understand the social support exchange patterns and user behaviors of an online smoking cessation intervention program[J]. Journal of the Association for Information Science and Technology,2015, 66(3):564-575.
[27]PARK H,PARK M S. Cancer information-seeking behaviors and information needs among Korean Americans in the online community[J]. Journal of community health,2013, 39(2):213-220.
[28]ZHANG J, ZHAO Y M,DIMITROFF A. A study on health care consumers’ diabetes term usage across identified categories[J]. Aslib journal of information management,2014, 66(4):443-463.
[29]ZHANG J, ZHAO Y M. A user term visualization analysis based on a social question and answer log[J].Information processing&management,2013, 49(5):1019-1048.
[30]LIANG B,SCAMMON D L. E-Word-of-Mouth on health social networking sites:an opportunity for tailored health communication[J]. Journal of Consumer Behaviour,2011, 10(6):322-331.
[31]BARNEY L J, GRIFFITHS K M,BANFIELD M A. Explicit and implicit information needs of people with depression:a qualitative investigation of problems reported on an online depression support forum[J]. BMC psychiatry,2011, 11(1):88.
[32]NASLUND J A, ASCHBRENNER K A, MARSCH L A,et al. The future of mental health care:peer-to-peer support and social media[J]. Epidemiology and psychiatric sciences,2016, 25(2):113-122.
[33]FOX S, DUGGAN M. Health online 2013[EB/OL].[2018-10-24].http://www.pewinternet.org/2013/01/15/health-online-2013/.
[34]SARASOHN-KAHN J. The wisdom of patients:health care meets online social media[EB/OL].[2018-10-24].http://www.chcf.org/publications/2008/04/the-wisdom-of-patientshealth-care-meets-online-social-media.
[35]FOX S. Peer-to-peer health care is a slow idea that will change the world[EB/OL].[2018-10-24].http://susannahfox.com/2013/08/03/peer-to-peer-health-care-is-a-slow-idea-thatwill-change-the-world/.
[36]GRAY N J, KLEIN J D, NOYCE P R,,et al. Health information-seeking behaviour in adolescence:the place of the internet[J]. Social science&medicine,2005, 60(7):1467-1478.
[37]PRICE S, MERCER S W, MACPHERSON H. Practitioner empathy, patient enablement and health outcomes:a prospective study of acupuncture patients[J]. Patient education and counseling,2006, 63(1-2):239-245.
[38]CHOU W-Y S, HUNT Y M, BECKJORD E B,et al. Social media use in the United States:implications for health communication[J]. Journal of medical internet research,2009, 11(4):e48.
[39]LANDRO L. Alone together cancer patients and survivors find treatment-and support-online. it can make all the difference[J]. The Oncologist,1999, 4(1):59-63.
[2]SUESS S. Consumer health information[J]. Journal of hospital librarianship,2001, 1(4):41-52.
[3]NIEDERDEPPE J, HORNIK R C, KELLY B J, et al. Examining the dimensions of cancer-related information seeking and scanning behavior[J]. Health communication,2007, 22(2):153-167.
[4]TU H T. Surprising decline in consumers seeking health information[EB/OL].[2018-10-24].http://www.hschange.com/CONTENT/1260/.
[5]MORELAND J, FRENCH T L,CUMMING G P. The prevalence of online health information seeking among patients in Scotland:a cross-sectional exploratory study[J]. JMIR research protocols, 2015, 4(3):e85.
[6]Pew Research Center. Health fact sheet[EB/OL].[2018-10-24]. http://www.pewinternet.org/fact-sheets/health-fact-sheet/.
[7]LEWIS D, EYSENBACH G, KUKAFKA R, et al. Consumer health informatics:informing consumers and improving health care[M]. New York, NY:Springer Science&Business Media, 2005.
[8]Pew Research Center. The Internet and health[EB/OL].[2018-10-24].http://www.pewinternet.org/2013/02/12/the-internetand-health/.
[9]KESELMAN A, BROWNE A C, KAUFMAN D R. Consumer health information seeking as hypothesis testing[J].Journal of the American Medical Informatics Association:JAMIA, 2008, 15(4):484-495.
[10]DEERING M J, HARRIS J. Consumer health information demand and delivery:implications for libraries[J].Bulletin of the Medical Library Association, 1996, 84(2):209-216.
[11]GRIFFIN R J, DUNWOODY S, NEUWIRTH K. Proposed model of the relationship of risk information seeking and processing to the development of preventive behaviors[J]. Environmental research,1999, 80(2):230-245.
[12]SONG H, OMORI K, KIM J,et al. Trusting social media as a source of health information:online surveys comparing the United States, Korea, and Hong Kong[J]. Journal of medical internet research, 2016, 18(3):e25.
[13]COLE J, WATKINS C,KLEINE D. Health advice from internet discussion forums:how bad is dangerous?[J].Journal of medical internet research,2016, 18(1):e4.
[14]HETHER H J, MURPHY S T, VALENTE T W. It’s better to give than to receive:the role of social support, trust,and participation on health-related social networking sites[J]. Journal of health communication, 2014, 19(12):1424-1439.
[15]KUTTSCHREUTER M, RUTSAERT P, HILVERDA F, et al. Seeking information about foodrelated risks:the contribution of social media[J]. Food Quality and Preference, 2014, 37:10-18.
[16]RUTSAERT P, PIENIAK Z, REGAN A, et al. Consumer interest in receiving information through social media about the risks of pesticide residues[J]. Food control,2013, 34(2):386-392.
[17]VAN DE BELT T H, ENGELEN L J, BERBEN S A,et al. Internet and social media for health-related information and communication in health care:preferences of the Dutch general population[J]. Journal of medical internet research,2013, 15(10):e220.
[18]WORRALL A, OH S. The place of health information and socio-emotional support in social questioning and answering[J]. Information Research,2013, 18(3):1-15.
[19]THACKERAY R, CROOKSTON B T,WEST J H. Correlates of health-related social media use among adults[J].Journal of medical internet research, 2013, 15(1):e21.
[20]KISHIMOTO K, FUKUSHIMA N. Use of anonymous web communities and websites by medical consumers in Japan to research drug information[J]. YakugakuZasshi,2011, 131(5):685-695.
[21]PRYBUTOK G, RYAN S. Social media:the key to health information access for 18-to 30-year-old college students[J]. CIN:computers, informatics, nursing,2015, 33(4):132-141.
[22]RASMUSSEN-PENNINGTON D M, RICHARDSON G, GARINGER C,et al.“I could be on Facebook by now”:insights from Canadian youth on online mental health information resources[EB/OL].[2018-10-24].https://mindyourmind.ca/expression/blog/i-could-be-facebook-now%C2%9Dinsights-canadian-youth-online-mental-health-information.
[23]BENETOLI A, CHEN T F, SPAGNARDI S, et al. Provision of a medicines information service to consumers on Facebook:an Australian case study[J]. Journal of medical mnternet research,2015, 17(1):e265.
[24]NATH C, HUH J, ADUPA A K,et al. Website sharing in online health communities:a descriptive analysis[J].Journal of medical internet research,2016, 18(1):e11.
[25]WESTBROOK L, ZHANG Y. Questioning strangers about critical medical decisions:“what happens if you have sex between the HPV shots?”[J]. Information research,2015, 20(2):667.
[26]ZHANG M, YANG C C. Using content and network analysis to understand the social support exchange patterns and user behaviors of an online smoking cessation intervention program[J]. Journal of the Association for Information Science and Technology,2015, 66(3):564-575.
[27]PARK H,PARK M S. Cancer information-seeking behaviors and information needs among Korean Americans in the online community[J]. Journal of community health,2013, 39(2):213-220.
[28]ZHANG J, ZHAO Y M,DIMITROFF A. A study on health care consumers’ diabetes term usage across identified categories[J]. Aslib journal of information management,2014, 66(4):443-463.
[29]ZHANG J, ZHAO Y M. A user term visualization analysis based on a social question and answer log[J].Information processing&management,2013, 49(5):1019-1048.
[30]LIANG B,SCAMMON D L. E-Word-of-Mouth on health social networking sites:an opportunity for tailored health communication[J]. Journal of Consumer Behaviour,2011, 10(6):322-331.
[31]BARNEY L J, GRIFFITHS K M,BANFIELD M A. Explicit and implicit information needs of people with depression:a qualitative investigation of problems reported on an online depression support forum[J]. BMC psychiatry,2011, 11(1):88.
[32]NASLUND J A, ASCHBRENNER K A, MARSCH L A,et al. The future of mental health care:peer-to-peer support and social media[J]. Epidemiology and psychiatric sciences,2016, 25(2):113-122.
[33]FOX S, DUGGAN M. Health online 2013[EB/OL].[2018-10-24].http://www.pewinternet.org/2013/01/15/health-online-2013/.
[34]SARASOHN-KAHN J. The wisdom of patients:health care meets online social media[EB/OL].[2018-10-24].http://www.chcf.org/publications/2008/04/the-wisdom-of-patientshealth-care-meets-online-social-media.
[35]FOX S. Peer-to-peer health care is a slow idea that will change the world[EB/OL].[2018-10-24].http://susannahfox.com/2013/08/03/peer-to-peer-health-care-is-a-slow-idea-thatwill-change-the-world/.
[36]GRAY N J, KLEIN J D, NOYCE P R,,et al. Health information-seeking behaviour in adolescence:the place of the internet[J]. Social science&medicine,2005, 60(7):1467-1478.
[37]PRICE S, MERCER S W, MACPHERSON H. Practitioner empathy, patient enablement and health outcomes:a prospective study of acupuncture patients[J]. Patient education and counseling,2006, 63(1-2):239-245.
[38]CHOU W-Y S, HUNT Y M, BECKJORD E B,et al. Social media use in the United States:implications for health communication[J]. Journal of medical internet research,2009, 11(4):e48.
[39]LANDRO L. Alone together cancer patients and survivors find treatment-and support-online. it can make all the difference[J]. The Oncologist,1999, 4(1):59-63.