基于《国际功能、残疾和健康分类(ICF)》框架的脊髓损伤延续护理移动APP的开发
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摘要
目的:以《国际功能、残疾和健康分类(ICF)》为理论框架,开发一款用于脊髓损伤患者延续护理的移动应用程序(APP)。方法:APP的设计和开发包括三个步骤:(1)经3轮Delphi国内专家调查,形成《脊髓损伤延续护理ICF组合》;(2)经专家咨询,从《脊髓损伤延续护理ICF组合》中确定可纳入延续护理随访APP的ICF类目,明确其评定方法和标准化指导方案;(3)软件工程师依据前期工作,使用Java语言开发APP。结果:该APP已初步开发完成,可实现医护人员对SCI患者出院后的远程评估、标准化健康指导、专科转介、信息交互和随访管理五大核心功能。结论:这款基于ICF的随访APP具有全面性、延续性、协调性、合作性、智能化和标准化的特点,能够满足脊髓损伤患者延续护理的需求。
Objective: To develop a mobile application(APP) for transitional care of patients with spinal cord injury(SCI) based on the International Classification of Functioning, Disability and Health(ICF).Method: Three steps of APP's design and development were as following:(1)A three-round Delphi expert survey was conducted to identify the ICF set for SCI transitional care.(2)An expert group consultation was conducted to determine the follow-up ICF categories from(1),and define the assessment methods and standardized guidance program.(3) Based on previous work, software engineers developed a mobile APP for the follow-up of SCI transitional care by using the Java language.Result: The APP has been tentatively developed. It can realize five core functions including remote assessment, standardized guidance, specialist referral, follow-up management and interaction between medical staff and patient with SCI after discharge.Conclusions: This APP based on ICF for the follow-up of SCI transitional care has the characteristics of comprehensiveness, continuity, coordination, collaboration, intelligence and standardization. It could satisfy the needs of SCI transitional care.
Objective: To develop a mobile application(APP) for transitional care of patients with spinal cord injury(SCI) based on the International Classification of Functioning, Disability and Health(ICF).Method: Three steps of APP's design and development were as following:(1)A three-round Delphi expert survey was conducted to identify the ICF set for SCI transitional care.(2)An expert group consultation was conducted to determine the follow-up ICF categories from(1),and define the assessment methods and standardized guidance program.(3) Based on previous work, software engineers developed a mobile APP for the follow-up of SCI transitional care by using the Java language.Result: The APP has been tentatively developed. It can realize five core functions including remote assessment, standardized guidance, specialist referral, follow-up management and interaction between medical staff and patient with SCI after discharge.Conclusions: This APP based on ICF for the follow-up of SCI transitional care has the characteristics of comprehensiveness, continuity, coordination, collaboration, intelligence and standardization. It could satisfy the needs of SCI transitional care.
引文
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[2]World Health Organizaition.International Perspectives on Spinal Cord Injury[J].Weed Research,2013,11(4):314-316.
[3]陈星月,陈栋,陈春慧,等.中国创伤性脊髓损伤流行病学和疾病经济负担的系统评价[J].中国循证医学杂志,2018,18(2):143-150.
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[10]戴霞,麻晓君,陆丽荣,等.“糖卫士”APP应用于糖尿病延续护理的实践[J].中国护理管理,2016,16,(7):963-967.
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[12]张晓云,魏丽丽,谷如婷,等.手机APP在产褥期妇女延续护理中的应用[J].齐鲁护理杂志,2017,23(12):4-6.
[13]Cieza A,Fayed N,Bickenbach J,et al.Refinements of the ICF Linking Rules to strengthen their potential for establishing comparability of health information[J].Disabil Rehabil,2016:1-10.
[14]Cieza A,Geyh S,Chatterji S,et al.ICF linking rules:an update based on lessons learned[J].J Rehabil Med,2005,37(4):212-218.
[15]Hilfiker R,Obrist S,Christen G,et al.The use of the comprehensive International Classification of Functioning,Disability and Health Core Set for low back pain in clinical practice:a reliability study[J].Physiother Res Int,2009,14(3):147-166.
[16]Li K,Yan T,You L,et al.The inter-rater reliability of the International Classification of Functioning,Disability and Health set for spinal cord injury nursing[J].Int J Rehabil Res,2016,39(3):240-248.
[17]Gao Y,Yan T,You L,et al.Developing operational items for the International Classification of Functioning,Disability and Health Rehabilitation Set:the experience from China[J].Int J Rehabil Res,2018,41(1):20-27.
[18]Wong F K,Mok M P,Chan T,et al.Nurse follow-up of patients with diabetes:randomized controlled trial[J].J Adv Nurs,2005,50(4):391-402.
[19]World Health Organizaition.International Classification of Functioning,Disability and Health[C].Geneva:2001.
[20]万春晓,毕胜.ICF应用的问题与难点[J].中国康复医学杂志,2013,28(10):961-966.
[21]Li K,Yan T,You L,et al.The inter-rater reliability of the International Classification of Functioning,Disability and Health set for spinal cord injury nursing[J].Int J Rehabil Res,2016,39(3):240-248.
[2]World Health Organizaition.International Perspectives on Spinal Cord Injury[J].Weed Research,2013,11(4):314-316.
[3]陈星月,陈栋,陈春慧,等.中国创伤性脊髓损伤流行病学和疾病经济负担的系统评价[J].中国循证医学杂志,2018,18(2):143-150.
[4]杨枭雄,于前进,秦江,等.脊髓损伤住院患者1027例流行病学分析[J].脊柱外科杂志,2016(5):301-305.
[5]钱春荣,朱京慈,杨燕妮.国内外延续护理的研究方案及构建[J].中华现代护理杂志,2012,(21):2481-2484.
[6]奚卫珍,章泾萍,潘丽英,等.家庭访视对截瘫患者生活质量影响的研究[J].安徽医学,2012,33(1):95-98.
[7]方红群,刘晓娟,高利英.电话随访式健康教育在脊髓损伤患者中的应用效果临床分析[J].当代护士(下旬刊),2014(12):149-150.
[8]杨颖,张建梅,杨杰.出院后定期门诊复查与延续性护理对脊髓损伤患者的影响比较[J].实用临床医药杂志,2017,(14):44-47.
[9]苏雁甜,邬丽满,冯惠平.微信健康教育联合电话随访对脊柱骨折伴脊髓损伤患者术后康复效果及自我管理能力的影响[J].护理实践与研究,2018,(5):152-154.
[10]戴霞,麻晓君,陆丽荣,等.“糖卫士”APP应用于糖尿病延续护理的实践[J].中国护理管理,2016,16,(7):963-967.
[11]Semple J L,Sharpe S,Murnaghan M L,et al.Using a mobile APP for monitoring post-operative quality of recovery of patients at home:a feasibility study[J].Jmir Mhealth&Uhealth,2015,3(1):e18.
[12]张晓云,魏丽丽,谷如婷,等.手机APP在产褥期妇女延续护理中的应用[J].齐鲁护理杂志,2017,23(12):4-6.
[13]Cieza A,Fayed N,Bickenbach J,et al.Refinements of the ICF Linking Rules to strengthen their potential for establishing comparability of health information[J].Disabil Rehabil,2016:1-10.
[14]Cieza A,Geyh S,Chatterji S,et al.ICF linking rules:an update based on lessons learned[J].J Rehabil Med,2005,37(4):212-218.
[15]Hilfiker R,Obrist S,Christen G,et al.The use of the comprehensive International Classification of Functioning,Disability and Health Core Set for low back pain in clinical practice:a reliability study[J].Physiother Res Int,2009,14(3):147-166.
[16]Li K,Yan T,You L,et al.The inter-rater reliability of the International Classification of Functioning,Disability and Health set for spinal cord injury nursing[J].Int J Rehabil Res,2016,39(3):240-248.
[17]Gao Y,Yan T,You L,et al.Developing operational items for the International Classification of Functioning,Disability and Health Rehabilitation Set:the experience from China[J].Int J Rehabil Res,2018,41(1):20-27.
[18]Wong F K,Mok M P,Chan T,et al.Nurse follow-up of patients with diabetes:randomized controlled trial[J].J Adv Nurs,2005,50(4):391-402.
[19]World Health Organizaition.International Classification of Functioning,Disability and Health[C].Geneva:2001.
[20]万春晓,毕胜.ICF应用的问题与难点[J].中国康复医学杂志,2013,28(10):961-966.
[21]Li K,Yan T,You L,et al.The inter-rater reliability of the International Classification of Functioning,Disability and Health set for spinal cord injury nursing[J].Int J Rehabil Res,2016,39(3):240-248.